About Us

 

The Illinois Respite Coalition started out as a grass roots organization that was formed in 1998 by a group of parents, concerned respite providers, state agencies and national leaders.  The group came together to address the desperate needs for respite services. 

 

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ILLINOIS RECEIVES LIFESPAN RESPITE GRANT!

HHS Assistant Secretary for Aging Kathy Greenlee announced 12 awards totaling nearly $2.3 million to implement the Lifespan Respite Care Program. Respite provides temporary relief for caregivers from the ongoing responsibility of caring for an individual of any age with special needs. 

Awards of up to $200,000 each were made to the following: Alabama, Arizona, Connecticut, District of Columbia, Illinois, Nevada, New Hampshire, North Carolina, Rhode Island, South Carolina, Tennessee, and Texas. 

Funding was made possible through the enactment of the Lifespan Respite Care Act of 2006.   Grantees will be improving statewide dissemination and coordination of respite care and providing, supplementing, or improving access to and quality of respite care services.  The ultimate goal of these activities is the reduction of family caregiver strain.

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Our History

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More than a decade ago, the Illinois Department of Children and Family Services (DCFS) received federal funding through the Temporary Child Care for Children with Disabilities and Crisis Nurseries Act (TCCA) to develop 6 demonstration grants across the state to fund crisis nurseries and respite programs.

The Illinois Respite Coalition (IRC) began as a grassroots organization that was formed in 1998 by a group of parents, concerned respite providers, state agencies and national leaders.

In 2003, Patricia Burke, stepped up as Chair. Mrs. Burke served as President of the coalition until February 2009 when she passed on February 17, 2009

Lois Kramer, who serves as the Director of Children's Services at Marklund was elected as Board President of the IRC in April 2009. She is currently serving in this role.

Originally, the IRC was created to educate legislators about the need for respite care services for people with disabilities. As the need for respite care began to reach across the lifespan and touch caregivers nationally, the IRC felt the need to advance the cause to advocate for many types and populations of caregivers.

In 2009, The IRC was pleased to announce that Illinois received a Federal Lifespan Respite Grant through the partnership with the Illinois Department on Aging. The grant will help advance the IRC’s mission and meet the definition of lifespan respite for children and adults.

The IRC has a professional volunteer Board of Directors and depends on membership for financial and volunteer support in order to advance universal access to quality respite services for residents of the State of Illinois. 

 

 

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What is Respite Care?     

According to the National Respite Coalition, respite care provides temporary relief for caregivers from the ongoing responsibility of caring for an individual of any age with special needs, or who may be at risk of abuse or neglect.   

Who are Family Caregivers? 

Special needs may include any disability, any chronic or terminal physical, emotional, cognitive or mental health condition requiring ongoing care and supervision, including Alzheimer’s disease and related disorders, developmental disabilities, and children with special medical needs. Family Caregivers provide unpaid, physical and/or emotional support to a loved one. See types of respite at: 96371270579107TypesofRespiteCare.docx 

 

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