Resources/Links
You'll find resources and links to various web sites here. If there is something you are looking for and do not see, email us at juliepandya@marklund.org.
To find a respite program near you, click on the ARCH logo!
DCFS Support Program Jan 2012:
23171328114034DCFSCaregiverSupportProgramJanuary20121and2.pdf
List of PAS Agencies in Illinois
Rehab Tip Sheets are located at:
http://main.uab.edu/tbi/show.asp?durki=90245
Links to people with disabilities that depend on a wheelchair: http://www.wheelchairnet.org/index.html
Abilities Expo: http://www.abilitiesexpo.com/chicago/index.html
American Brain Tumor Association – Care & Support:
http://www.abta.org/Care_And_Support/48
Abuse/Neglect Hotlines
Department of Human Services – Reporting abuse and neglect for people with disabilities:
http://www.dhs.state.il.us/page.aspx?item=29428
Reporting Abuse on the Aging:
http://www.state.il.us/aging/1abuselegal/abuselegal-main.htm
DCFS Child abuse/neglect:
http://www.state.il.us/dcfs/FAQ/faq_faq_can.shtml
Volunteers
A Valuable Resource for volunteers:
http://www.archrespite.org/archfs18.htm
Volunteer Protection Act : http://www.npccny.org/info/gti2.htm
Assessments and tools:
Washington State University Caregiver Assessment tool:
http://caregiver.wsu.edu/default.asp?PageID=3531
American Medical Association – Caregiver Assessment Tool:
http://www.ama-assn.org/ama/upload/mm/36/caregivertooleng.pdf
Non- Profit Risk Management Center - Assessment:
http://nonprofitrisk.org/consulting/volunteer-risk-assess.shtml
Rural Communities
Rural Health and Rural Community Human Resources on line: http://www.raconline.org/states/illinois.php
Lifespan Respite Programs
ARCH Respite Resources: http://chtop.org/ARCH.html
Alabama Lifespan Respite – Definition of Respite (About Respite):http://www.alabamarespite.org/about.htm
Area on Aging – Lifespan Respite Program Description:
Pediatric and Youth References & Resources
Division of Specialized Care for Children (DSCC) --- This reference has over 50 organized resources for parents/caregivers caring for children with special health care needs: http://internet.dscc.uic.edu/dsccroot/links.asp
HealthyChildren.Org: A new website brought to you by the American Academy of Pediatrics. Great information!!! (Also in Spanish):
http://www.healthychildren.org/English/Pages/default.aspx
DCFS – LINKS: http://www.state.il.us/dcfs/l_links.shtml hundreds of links for children protection and care.
Autism Illinois Support Groups:
http://autismillinois.org/supportgroups.aspx
Illinois Yellow Pages for Kids:
http://www.yellowpagesforkids.com/help/il.htm
Senior References and Resources
Elder Care:
http://www.eldercare.gov/Eldercare.NET/Public/Resources/fact_sheets/respite_care.aspx
Illinois Department on Aging Senior Help Line: (an emergency and information help line): http://www.state.il.us/aging/1helpline/helpline-main.htm
Illinois Department on Aging resources and links: Tons of links that will direct you to senior services: http://www.state.il.us/aging/
2011 Alzheimer's Facts and Figures report: Just released! 2011 Alzheimer's Facts and Figures report.
Alzheimer's disease or a related dementia: http://www.alz.org/
Caring for Your Parents Video and guide: http://www.shoppbs.org/product/index.jsp?productId=3081756
Training Sites – Tools and Resources:
Illinois Respite Coalition – 4 trainings per quarter and our annual summit!
(Visit our calendar for information)
Safeguards Respite Learning Portal: http://www.respitecourse.ca/index.html
Basic First Aid tips:
http://firstaid.about.com/od/cpr/ss/abcs.htm
Principals of Caregiving – A resource Guide - Arizona Direct Care:
Family Caregiver Alliance: http://caregiver.org/caregiver/jsp/home.jsp
OJP Grants 101 Training: http://www.ojp.gov/grants101/
Safety/ First Aid
Hand washing Tips - Mayo Clinic:
http://www.mayoclinic.com/health/hand-washing/HQ00407
Client Safety Website and Resources:
http://orthoinfo.aaos.org/topic.cfm?topic=A00286
American Academy of orthopedic surgeons:
http://orthoinfo.aaos.org/menus/safety.cfm
MEMBER WEBSITES AND LINKS
Thanks to our Members for helping the IRC offer wonderful tools, resources and support for Illinois caregivers!
GRANTS FOR CAREGIVERS AND PROVIDERS
OJP Grants 101 class
ALS
http://www.lesturnerals.com/respitecare.htm
Alzheimer’s
http://www.alzfdn.org/AFAServices/family_grant.html
AdoptUSKids Mini-grants
http://www.adoptuskids.org/resourceCenter/parentSupport/miniGrantRecipients.aspx
ARCH – Finding federal funds for respite and crisis care FACT Sheet #52
http://www.archrespite.org/archfs52.htm
Ride for LIFE - ALS Grants for Respite Care $1,500.00 in care!!
Children with AIDS charity – respite grants
http://www.cwac.org/how_we_help_hardship.htm
The Association for Frontotemporal Dementias - 2010 caregiver grants
http://www.ftd-picks.org/front-page/2010-caregive-respite-grants-available
The Brookdale Foundation – National funding
http://www.brookdalefoundation.org/aboutus.html

Impacting Lives Across the Lifespan
for Caregivers and their Families
Respite Care Counts!

